Good Day

We were back downtown today for Aidan's check. All things were great! Aidan's platelets finally are above 100, 000! (which only has taken like 2 years...) Normal range starts at 140, 000, but platelets are one of those bodily things that takes a long time to recover from (obviously).
When we ended treatment last year, it was decided that Aidan would no longer get scanned. One of the good (I use this term lightly) things about neuroblastoma is that it can be detected in the urine. Dr. Morgan, Aidan's oncologist, did want to scan him anymore unless something was off. She informed us today that a new study is out suggesting that the MIBG scan (a very sensitive nuclear med. scan) is actually more sensitive to relapse than the blood and urine screenings alone. So, we are back to the scans. At this point, we are not sure how often he will get scanned. This will be determined in the next few weeks. We are up for ANYTHING that will help detect relapse sooner. Good thing he won't relapse...and yes, I did inform the doctor of that today!!NO relapses for us!
We have some big insurance decisions to make right now. Please pray for us. Basically, our insurance, which has been great, wants us to leave Children's Memorial because they are out of network. They want us back at our "in-network" diagnosing hospital. How do we leave the hospital that saved our son's life? We have options, although they may just be very pricey ones...
I will post again soon. We will be at Crystal Lake Wal-Mart for a jail and bail later this month. Also, I will post the scan date, as we will DEFINITELY need lots of good thoughts and prayers on that day. Don't forget about the Great America Walk June 27th! We hope you will be there to walk on "Team Aidan"!!

Till Next Time...

That Funny Feeling

So that "feeling" is back. Aidan has his 3 month check-up next week. I am starting to look at him in a strange way...last night I actually took a flashlight in his room and examined his legs and arms for any strange bruising while he slept. Help! I am a crazed mom. What have I resorted to? :) Bruising due to unknown reasons is a red flag for the docs. It could be indicative that something is wrong. I think I need next week to be here now!
With my craziness in mind, will you send up extra prayers for us right now. With all the flu junk going around, I am a nervous wreck. Yes, his immune system is great, but STILL. I can't shake that funny feeling. Also say a prayer that our new blood draw clinic works out. We can no longer get our labs done at Children's (insurance, of course) and honestly, we have had NO luck finding a place that's close AND can work well on kids. Luckily, we have a new site available to us in Gurnee that isn't an hour away. Amen! Now, let's hope they have the patience for Aidan AND Randy. :)
Hoping all is well in your part of the world. Please keep us in your prayers. We need them.